Full-time, permanent (hybrid/remote options available)
Salary: $60,000/year
Purpose: To support the community services and programs of a small rare disease non-profit organization.
Reports to: Executive Director
Position Overview: The Community Engagement Coordinator plays a vital role in connecting our organization with patients, caregivers, healthcare professionals, and advocacy partners across Canada. Reporting directly to the Executive Director, you will serve as the primary bridge between our community and our programs. As part of a nimble small team, this role requires an adaptable, empathetic self-starter who thrives in a collaborative, cross-functional environment and is passionate about elevating the patient voice.
ImmUnity Canada is a national charity providing support, education and advocacy to patients and families whose lives are affected by Primary Immunodeficiency (PI). Primary Immunodeficiency diseases are a genetic group of over 400 rare blood diseases that cause the immune system to be defective. Some travel within Canada will be required for this role.
Key Responsibilities:
1. Patient & Community Relations
- Liaise with Patients & Caregivers: Serve as an approachable point of contact for individuals seeking resources, navigating care paths, or looking to share their stories.
- Support Group Facilitation: Coordinate, host, and facilitate virtual or in-person peer support networks and patient education workshops.
- Stakeholder Collaboration: Maintain and strengthen strategic relationships with regional healthcare providers, partner charities, and medical advisory committees across Canada.
2. Advocacy & Awareness Campaigns
- Mobilize Grassroots Advocacy: Engage community members to participate in letter-writing, health policy campaigns, and provincial/federal awareness initiatives.
- Resource Development: Assist the ED and program staff in creating, updating, and distributing patient-facing resources, toolkits, and blog content.
- Event Coordination: Lead the planning and logistics for national awareness weeks, patient forums, and small-scale community fundraisers.
3. Digital Communications & Outreach
- Social Media & Newsletters: Manage the organization’s community-facing channels (e.g., e-newsletters, Facebook groups, Instagram) to keep stakeholders informed and interactive.
- Storytelling: Conduct interviews and draft compelling profiles of patient experiences to highlight systemic health gaps and humanize our advocacy goals.
4. Database & Team Support
- CRM Management: Maintain clean data entries for the patient/donor database, tracking engagement metrics and community feedback.
- All-Hands Team Support: Collaborate actively with the other staff members on organizational priorities, grant reporting data, and operational needs as directed by the ED.
Qualifications & Competencies
- Education: Post-secondary education in Health Sciences, Communications, Social Work, Public Relations, or a related field.
- Experience: 2+ years of experience working in a Canadian non-profit, community health sector, or patient support capacity.
- Personal Skills: Outstanding active listening and interpersonal skills, with the capacity to support individuals navigating complex or sensitive health journeys.
- Communication: Exceptional written and verbal communication skills; ability to translate complex medical or policy concepts into plain, accessible language.
- Tech Knowledgeable: Proficiency with basic computer platforms (G Suite, Microsoft Office), email marketing (e.g., Constant Contact, Mailchimp), and virtual meeting tools (e.g., Zoom, Teams, Slack).
- Bilingualism: Proficiency in both English and French is considered a highly desirable asset for national reach.
To apply, please send your current resume and cover letter to info@immunitycanada.org by Tuesday December 1, 2026.
ImmUnity Canada is an equal opportunity employer. We seek a broad and diverse pool of candidates and strongly believe that our organization benefits from the perspectives and talents of a diverse staff.
